The Ongoing Vigilance Against COVID-19

As we mark the fifth anniversary of the first confirmed COVID-19 case in the United States, the virus's shadows loom large over many Americans. One such individual is 55-year-old Susan Scarbro from Sunset Beach, North Carolina. With multiple immune disorders rendering her highly susceptible to infections, she remains acutely aware of the risks around her.

“Any moment someone could cough, just by accident,” Susan says, a mask clinging tightly to her face as she attempts to enjoy a bowling game. “That cough could be the one thing that makes me sick.”

Despite the official end of the pandemic's emergency phase in May 2023, many continue to navigate life with heightened caution. Scarbro and those like her are a testament to the enduring impact of a virus that claimed 1.2 million lives in the U.S. alone. They rely on masks, limit social interactions, and often resort to unconventional methods to minimize risks—ranging from carrying personal carbon dioxide monitors to gargling with antiseptic mouthwash, a strategy with no scientific basis.

Community and Support

In online support groups, the discourse revolves around the risks of reinfection and potential long-term cognitive impairments arising from COVID-19. The community longs for the empathy they experienced during the pandemic's onset, as many have lost friendships and search for new means to maintain social connections essential for their mental health.

Scarbro expresses that her bowling league helps foster a sense of community. However, she has faced increasing scrutiny from fellow bowlers regarding her mask. “At first, there was understanding. But now, many expect me to just move on and don’t grasp that I've always had to take these precautions for my health,” she explains.

Unique Challenges for the Immunocompromised

While the broader U.S. population has developed some immunity through vaccinations or past infections, those with compromised immune systems like Scarbro—who suffers from common variable immune deficiency—face unique challenges. According to Andrew Pekosz, a virologist from Johns Hopkins University, "For this community, there’s never a moment of respite. Keeping up with such vigilance is both challenging and exhausting."

Diverse Perspectives and Strategies

People taking steps to safeguard their health come from various backgrounds. For instance, 61-year-old Bazia Zebrowski from Ohio, who battles myalgic encephalomyelitis, has adopted a home-centric lifestyle. She ventures out only for necessary medical appointments as her husband takes on grocery shopping—a vital change considering their fear of contracting COVID-19.

“I don’t see myself as cautious; I’m COVID competent,” she states firmly. “I understand the risks, and I’m managing them.” Still, she expresses longing for the sense of community during the early pandemic days. “How hard is it to put on a mask? It shakes your faith in humanity to see how easily others dismiss the gravity of the situation.”

Steve Alejandro from Missouri identifies as a "COVID shielder," taking precautions mainly to protect his wife, Ashley, who also has myalgic encephalomyelitis. He completely altered his career during the pandemic to ensure her safety. Meanwhile, Kira Levin serves as the primary caregiver for her 98-year-old grandmother and wears a mask even in social gatherings, demonstrating the lengths to which some will go to protect loved ones.

Innovative Solutions for Connection

In a world seemingly moving on, the Child sisters from Denver have created a dating app called Dateability, catering to those with disabilities and health concerns. Users can designate themselves as "COVID Cautious" on their profiles—a reflection of the new landscape of social interaction shaped by the pandemic.

Immunologist Akiko Iwasaki from Yale University embodies this sentiment, wearing masks indoors and staying current on vaccinations. “I simply cannot risk my health being compromised. The scientific community is still unraveling the complexities of COVID-19, particularly concerning long-term effects," she explains.

Ambiguity and Vigilance Ahead

For individuals like Scarbro, the path forward is filled with ambiguity. Her family remains vigilant, often evaluating the COVID safety practices of those around them. “I feel very scared about the future,” Scarbro admits. “As the world reverts to a pre-COVID normal, my family is working hard to keep me safe. But it’s not easy."

As the nation grapples with its next steps, the experiences of these cautious individuals serve as a stark reminder—while many return to their routines, a significant number continue to navigate a world forever altered by COVID-19. Their stories need to be heard, not just for understanding but also for compassion as we all find our way in this new reality.