In a heart-wrenching battle against a debilitating condition, a County Durham woman is taking matters into her own hands. After experiencing an astonishing 27 seizures in just one night, Karla Rutherford felt compelled to create a support group for others facing the same challenges.

Unseen Struggles: The Reality of Functional Neurological Disorder

At 39 years old, Karla is living with Functional Neurological Disorder (FND), a condition that affects how the brain communicates with the body. After her diagnosis in 2023, she quickly discovered a frustrating truth: many healthcare professionals were woefully uninformed about her condition, which isn't as rare as one might think.

A Voice for the Voiceless

"I didn’t have the support when I was diagnosed, and I know how much my mental health suffered as a result," she shared, emphasizing her desire to ensure no one else feels isolated in their struggle. Karla has initiated regular coffee mornings at the Chester-le-Street Community Centre, inviting individuals with FND to gather, share experiences, and foster a sense of community.

Monthly Meetups to Foster Hope

These supportive meetups occur on the third Wednesday of each month at 11:00 BST, offering a safe space for individuals to connect. The group aims to shed light on the often misunderstood symptoms of FND, which can include not only seizures but also weakness in limbs, paralysis, and tremors.

Breaking the Stigma Surrounding FND

Prominent neurologist Jon Stone from the Royal Infirmary of Edinburgh highlights a critical issue: patients with FND frequently face skepticism, with their symptoms dismissed as 'all in their mind.' "It’s crucial to understand that these symptoms are real and deeply impactful on individuals’ lives," he stated.

Karla's Daily Trials and Triumphs

Karla's condition means she endures nightly seizures, leaving her with weakness on her right side, difficulty lifting her arm, and facial droopiness that can mimic the effects of a stroke. Despite these challenges, her spirit remains unbroken as she raises awareness and builds a resourceful network for those who need it most.

Join the Movement for Awareness and Support

With her courage and determination, Karla Rutherford is not just surviving; she is thriving and empowering others in her community. For anyone battling similar issues, the support group represents a beacon of hope and solidarity.