A Dire Childhood Epidemic: Understanding Retinoblastoma

Retinoblastoma (RB)—the leading cause of childhood blindness—is a devastating diagnosis affecting 1 in every 16,000 to 18,000 live births worldwide. In China, approximately 1,100 new cases emerge each year, primarily impacting children under five, as 95% of RB cases are diagnosed before this age. Despite advancements in treatment that have significantly improved survival rates, many survivors are left grappling with severe vision impairment or blindness.

The Ripple Effect of Cancer: Family Strain and Mental Health Crisis

The burden of cancer doesn't only affect the child; it reverberates through the family. Caregivers, often the parents, encounter long-lasting psychological challenges—including anxiety, depression, and fear of disease recurrence. Studies highlight that these caregivers are at a heightened risk for psychiatric disorders, particularly in the crucial first year following diagnosis. This extensive emotional toll often goes unnoticed, yet it critically impacts family dynamics and children's socio-emotional development.

A Closer Look: The Study of Chinese Parents