A Heartfelt Journey Begins

At just 17 months old, Olivia Taylor was faced with a life-altering diagnosis: an inoperable brain tumor known as an optic nerve glioma. For parents Lisa and Matthew Taylor, the realization came in January 2018, just as Olivia's unique spirit began to shine.

From Sight to Darkness

In an unimaginably swift turn of events, Olivia lost her sight just a month after her diagnosis. Now nine years old, she navigates the world with only about 1% vision, relying on a cane and braille technology at school. Despite insurmountable obstacles, her parents don’t describe her as a victim, but rather as their very own superhero.

A Battle Against the Odds

Her health struggles have been exhaustive. Olivia has endured multiple rounds of chemotherapy and two significant brain surgeries that left her with a noticeable 'Harry Potter scar.' These challenges have required emotional support that comes in the form of her beloved teddy bears, affectionately named 'Corry,' who accompany her on hospital visits.

Advocating for Childhood Cancer Awareness

In honor of Childhood Cancer Awareness Month, Olivia is a shining face for the 'Always By Your Side' campaign by Children with Cancer UK. Her story of resilience is a beacon of hope that resonates with everyone she meets. Father Matthew emphasizes her charm, stating, "When you see Olivia, you can’t help but fall in love with her."

The Silent Fight Before Diagnosis

Lisa reflects on a critical delay in Olivia's diagnosis, believing key symptoms were overlooked by doctors. From fluctuating balance to unusual behavior changes, Olivia exhibited signs that something was amiss long before her official diagnosis. Their journey was fraught with uncertainty, yet Lisa's instincts propelled them to keep seeking answers.

A Tumor Too Large to Ignore

The shocking news came in late December when Olivia suffered a fall during a doctor’s visit, prompting urgent scans that unveiled a massive tumor measuring 8cm by 6cm. The diagnosis marked the beginning of a medical odyssey filled with difficult choices.

Courage in the Face of Adversity

After enduring tough treatments with little progress, the Taylors made the audacious choice to pursue a biopsy last year. This risky decision paved the way for innovative treatment options, allowing Olivia to benefit from breakthrough therapies that are now under NHS care. Matthew notes, "Thanks to prior research and fundraising, Olivia is among the first children to receive this game-changing treatment."

Life as a Young Hero

Despite her challenges, Olivia thrives. She showcases her talent in English and navigates her way through school with advanced braille technology. With the heartfelt support of her friends, family, and her six-year-old sister, Imogen, Olivia embodies resilience and joy, reminding everyone that life can be beautiful even amidst struggles.

A Royal Connection and a Bright Future

Olivia's aspirations don't just extend to her studies. She's had remarkable experiences, including participating in a Christmas performance at Buckingham Palace and meeting royalty. As part of her advocacy, her parents encourage others to recognize hidden disabilities and to always seek medical advice for unusual symptoms.

The Power of Hope and Advocacy

In the face of adversity, Olivia teaches us invaluable lessons about courage and strength. Her story inspires those around her, proving that while her tumor may have robbed her of her sight, it has not dimmed her sparkle—a sentiment echoed by her proud father. 'Olivia is extraordinary, and we are so proud of her warrior spirit.'