An Inspiring Journey through Music and Advocacy

This summer, McGill University’s third-year Biology student, Ryan Hull, embarked on an extraordinary quest: biking across the stunning landscapes of Quebec while captivating audiences with classical piano performances. His mission? To raise both funds and awareness for rare disease research, all while sharing his love for music.

Piano Melodies and Personal Connections

Hull's tour has taken him from the vibrant streets of Quebec City to the charming coastal community of Les Bergeronnes. At every stop, local crowds have been treated to exquisite renditions of Bach, Chopin, and Beethoven, all while shining a spotlight on the critical issue of rare diseases.

“This project allows me to support a cause I care about deeply while doing what I love— all on a dream cycling adventure,” Hull expressed. He is eager to continue spreading awareness across Quebec.

A Journey from Heartbreak to Advocacy

Inspired by a family member's struggle with a rare disease, Hull’s advocacy reaches beyond himself, aiming to uplift the nearly 700,000 Quebecers living with these conditions. Many face prolonged diagnostic delays and limited treatment options.

“Quebec is fortunate to have healthcare networks dedicated to rare diseases like RQMO and RARE.Qc, but they are often underfunded and unheard of by the public,” Hull noted, emphasizing the need for greater awareness.

Harmonizing Music with a Mission

A classically trained pianist since childhood, Hull’s passion for music drives him. Having performed charity concerts for causes like the Ukrainian Red Cross and local palliative care homes, he believes music can unite people for a cause.

In addition to his tour, Hull actively contributes to Montreal's musical community through performances and teaching piano to underserved groups via the Montreal Heart of the City Piano Program.

The Grand Finale Approaches

As Hull approaches the culmination of his tour on August 24, just as the fall semester begins, he hopes to add more performances, including a potential benefit concert at McGill University.

“Performing at the University would be a perfect conclusion for my fundraiser, given its prominence in both the medical and musical fields,” he shared.

Illuminating the World of Rare Diseases

Rare diseases, often deemed orphan diseases, affect a small part of the population—typically defined in Canada as fewer than 1 in 2,000 people. However, when viewed collectively, these conditions, including various cancers and cystic fibrosis, are far from rare.

Living with a rare disease can bring about numerous challenges, from delays in receiving diagnoses to financial burdens and lack of support systems. That’s why Hull’s tour is crucial; it aims not just to gather donations but to enlighten the public about these often-overlooked realities.

Despite putting his bike aside for classes soon, Hull plans to continue his fundraising efforts until mid-October, ensuring that the conversation about rare diseases doesn’t end with his tour.