Celebrating the Launch of 'What Parkinson’s Feels Like'

Today marks a significant milestone in raising awareness about Parkinson’s disease with the launch of Barbara Salsberg Mathews' beautifully illustrated eBook, "What Parkinson’s Feels Like." This innovative project aims to capture the complex emotions and experiences of those living with the disease through a mesmerizing blend of art and personal narratives.

The Artist’s Journey

Barbara Salsberg Mathews, an artist residing in Guelph, was diagnosed with Parkinson’s in 2020. Drawing upon her own journey and insights from others around the globe, she combined mixed media techniques including watercolor and Photoshop to create thought-provoking illustrations that reflect what living with Parkinson’s truly feels like.

Art Meets Personal Narratives

Each artwork is paired with poignant testimonials from individuals diagnosed with the disease, providing a compelling glimpse into their daily struggles and triumphs. One powerful account shared by Salsberg Mathews encapsulates her experience: “Parkinson’s is like a grey mist, floating towards me from behind to take me down. It sneaks up insidiously, trying to lull me into sleep.” This striking metaphor is visually represented by an illustration of a figure standing on rocks as a wave threatens to crash over them—a representation of her ongoing battle against the disorder.

Lived Experiences and Coping Mechanisms

“For me, this is a daily reality. I imagine the wave rolling over my shoulder as a way to cope and keep moving forward. Parkinson’s affects cognitive function as well as physical abilities, and each day presents new challenges,” she shared in an interview, shedding light on the multifaceted nature of the disease.

A Heartfelt Collaboration

In her illustrator's note, Salsberg Mathews expressed heartfelt gratitude to those who contributed their experiences, emphasizing the importance of shared stories in fostering connection and support within the Parkinson’s community. "Your descriptions reminded me that I’m not alone. This book could not have been made without sharing your lived experiences," she wrote.

An Educational Resource and Call to Action

The eBook is not just a collection of illustrations but also a call to action—an educational resource designed to raise awareness about the realities of Parkinson’s. “We are more than our diagnosis. We’re people striving to live our best lives alongside this condition,” Salsberg Mathews affirmed.

Collaboration with Parkinson’s Europe

Collaborating with Parkinson’s Europe, an organization dedicated to improving the lives of individuals with Parkinson’s across Europe, Salsberg Mathews was able to gather a rich tapestry of narratives. Although she wished to illustrate each description, she recognized her own limitations due to the progression of her symptoms, stating, "My hand would have run out of gas," referring to the need to pace herself while creating.

A Compassionate Initiative

"What Parkinson’s Feels Like" is more than just an eBook—it's a compassionate initiative that seeks to illuminate the shadows of Parkinson’s with both artistry and advocacy. Through this impactful project, Salsberg Mathews invites us all to engage with the experiences of those living with the disease, fostering greater understanding and empathy.

Join the Movement

Don't miss out on this enlightening journey—explore the eBook today and join the movement to share the diverse narratives of individuals living with Parkinson's!