A Grateful Family's Journey

In a heartwarming display of community spirit, the Pollock family from Vancouver Island is overflowing with gratitude. Their 10-year-old daughter, Charleigh, is bravely fighting Batten disease, a rare and dire condition that has robbed her of much of her childhood.

Hope Through Generosity

Thanks to the incredible generosity of the public, the family has successfully funded a crucial dose of Brineura, one of the few treatments available for this life-threatening disease. In a heartfelt social media post, they expressed their deep appreciation for the support that made this milestone possible.

"With your generosity and support, it has been made possible to purchase the 1st privately funded dose of Brineura," the family shared, reflecting both their hope and their resolve.

A Critical Turning Point

Just last month, their hopes were dashed when the provincial government announced it would no longer cover Charleigh's medication, dismissing it due to what they claimed was insufficient clinical evidence supporting its efficacy. This alarming decision left the family in a dire situation, but the community stepped up.

A Call to Action from Premier David Eby

In light of the public outcry, Premier David Eby has suggested that the government could reconsider their stance on Brineura if new evidence comes forward. He urged the pharmaceutical company to submit any new findings to the drug review agency, potentially paving the way for future coverage.

This story exemplifies the power of community and hope, reminding us that even in challenging times, collective action can bring about miraculous change. The Pollocks' journey is far from over, but with the continued support of their community, they are holding on to hope for a brighter future.