Introduction

In a touching and deeply personal story from Bristol, Shareen Elnagy, 34, is on a mission to raise awareness about the serious brain infection known as encephalitis after losing her mother to the illness.

A Mother's Battle

Her mother's battle began on October 14, 2021, marked by symptoms such as severe nausea and neck pain, which tragically escalated over a short period.

Despite her mother initially presenting with flu-like symptoms, including a rash and delirium, the diagnosis of encephalitis came too late. By the time she received treatment, the infection had already progressed significantly, leading to her untimely death in September of the following year.

The Importance of Awareness

The urgency of Elnagy's message is clear: "I don't want any other family to go through this." Encephalitis, which affects approximately 4,000 people each year in the UK, can be caused by viral or bacterial infections and results in inflammation of the brain.

This serious condition can develop quickly, and understanding the symptoms is crucial for early diagnosis and treatment.

A Hurdles in Treatment

Elnagy recounted the harrowing experience of her mother's rapid decline. Initially vibrant and happy, her mother became increasingly confused and even began to collapse.

The family quickly sought medical help, but despite showcasing clear signs of distress, including a spreading rash that became painful and itchy, her concerns were not adequately addressed in the hospital.

The Shocking Cause

Miraculously, the infection that led to her mother’s encephalitis originated from shingles, a condition tied to the chickenpox virus. Elnagy explained, "The skull stops the brain from expanding, and that's when the brain injury happens. The impact is devastating."

Recognizing Symptoms

This poignant journey highlights the critical need for awareness surrounding the signs of encephalitis. Elnagy stressed the importance of recognizing symptoms such as a sudden change in behavior, fever, rashes, and confusion, urging families to seek immediate medical attention when these indicators arise.

"The earlier it is diagnosed and treated, the better the outcomes," she said.

Challenges During Hospitalization

Tragically, her mother endured a seven-month hospital stay filled with setbacks, including a fungal blood infection and loss of hearing, exacerbated by the transfers between wards due to COVID-19.

Each new doctor meant beginning the struggle anew as her family fought to maintain communication and care for her well-being.

A Heartbreaking Loss

In the end, Elnagy's mother passed away just days after her birthday. Her message is heartfelt: "Everyone fell in love with mum; she was so kind, and it breaks my heart she had to go through this."

Conclusion

In sharing her story, Elnagy hopes to enlighten others about this often-overlooked condition. "Know what to look out for," she urges.

"If someone is acting unusual, presents with fever or rash alongside confusion, act quickly. Get seen, get scans, conduct a lumbar puncture—this is how you can diagnose encephalitis early and provide crucial treatment."

Let this tragic narrative serve as a wake-up call. Know the signs, act swiftly, and help prevent other families from experiencing the pain of losing a loved one to encephalitis. Your awareness could save a life!